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The directory should be considered a starting
point for finding a suitable team for your needs.


The Australasian Cleft Lip and Palate Association (ACLAPA)

Cleft Palate and Lip Society Australia

Operation Restore Hope
PO Box 1185
Double Bay, NSW 1360
Sydney, Australia
Phone:  +61 (2) 9362 7480
Fax:  +61 (2) 9328 6036


About Face International
123 Edward Street, Suite 1003
Toronto, ON M5G 1E2
Phone:  (800) 665-FACE (3223)

Transforming Faces Worldwide
1370 Don Mills Road, Suite 300,
Toronto, Ontario, Canada, M3B 3N7
Phone/Fax:  (416) 222-6581

Making Faces
6 Sorauren Avenue
Toronto, Ontario, Canada M6R 2C7
Phone:  (416) 875-3223 (FACE)

cleftAdvocate Pathfinder (Cleft Lip/Palate)
Tammie Short
Medicine Hat, AB, Canada

cleftAdvocate Pathfinder (Pfeiffer Syndrome)
Jo-anne Perras
Gatineau, Quebec, Canada

cleftAdvocate Pathfinder (Cleft Lip/Palate)
Stephanie Parks
Trenton, Ontario, Canada
Phone:  (613) 394-4395

cleftAdvocate Pathfinder (Pierre Robin Sequence)
Jaccee Wilson
Edmonton, Alberta, Canada
Phone:  (780) 235-3585


cleftAdvocate Pathfinder (Crouzon Syndrome)
Francisco Pacheco
Phone:  0115932-2-3131654


Cleft Lip and Palate Association
3rd Floor, 235-237 Finchley Road,
London, NW3 6LS
Phone:  0171- 431 0033
Fax:  0171- 431 8881

CLAPA Local Chapters

Changing Faces
The Squire Centre
33-37 University Street
London, WC1E 6JN
Phone:  0845-4500-275
Fax:  0845-4500-276

British Association of Plastic Surgeons
The Royal College of Surgeons of England
35-43 Lincoln's Inn Fields,
London, WC2A 3PN
Phone:  0171-831-5161/2
Fax:  0171-831-4041

British Association of Aesthetic Plastic Surgeons
The Royal College of Surgeons of England
35-43 Lincoln's Inn Fields
London, WC2A 3PN
Phone:  0171-405-2234
Fax:  0171-430-1840

British Association of Oral & Maxillofacial Surgeons
The Royal College of Surgeons of England
35-43 Lincoln's Inn Fields
London, WC2A 3PN
Phone:  0171 - 405 8074
Fax:  0171 - 430 9997

Craniofacial Support Group
44 Helmsdale Road, Leamington Spa,
Warwickshire, CV32 7DW, UK.
Phone:  01926 334629

Changing Faces
1 & 2 Junction Mews, London W2 1PN
Phone:  0171 706 4232
Fax:  0171 706 4234

Contact a Family (CaF)
209-211 City Road
London EC1V 1JN
Phone:  020 7608 8700
Helpline: 0808 808 3555 Free for parents
(10am - 4pm Mon-Fri)
Fax:  020 7608 8701

Face the Future
Skills for People
Key House, Tankerville Pl,
Jesmond Newcastle upon Tyne NE2 4AB
Tel/Fax: (0191) 2212180

Let's Face It - U.K.
62 Fortescue Road,
Edgware, Middlesex
HA8 0HN London
Phone/Fax:  0181 9312829

The RAFT Institute of Reconstructive,
Plastic & Burns Surgery Research
Mount Vernon & Watford Hospitals NHS
Trust Northwood, Middlesex, HA6 2RN, UK
Phone:  010 44 (0)1923 844017
Fax:  010 44 (0)1923 844031

Headlines the Craniofacial Support Group
128 Beesmoor Road, Frampton Cotterell
Bristol, BS36 2JP
Phone:  +44 (0)1454 850557


European Organization for Rare Disorders (EURORDIS)
(Plateforme Maladies Rares)
102, rue Didot
75014 Paris
Phone:  +33 (1)
Fax:  +33 (1)


Selbsthilfegruppe Ektodermale Dysplasie e. V.
Landhausweg 3
D-72631 Aichtal
Tel.: 07127.969691
Fax: 07127.969692
Andrea Burk

Hong Kong

Hong Kong Association for Cleft Lip and Palate
  Add Unit 11-12, G/F., Wang Wai House, Wang Tau Hom Est
  Phone:  2338 7901, 2794 1915 
  Fax:  2338 7924


cleftAdvocate Pathfinder
Dr. Dinesh Singh Chauhan


Cleft Lip and Palate Association of Ireland


Stichting Eigen Gezicht (Own Face Foundation)
Buys Ballotstraat 15
6533 ML Nijmegen
Telefoonnummer: 024-3500191
Patty Gerrits -

New Zealand

Cleft Lip and Palate Support Group of New Zealand
PO Box 13 385, Onehunga
Phone: 0800 4 CLEFT


Norway Craniofacial Association


International Centre for Disfigurement
Disfigurement Guidance Centre
PO Box 7
Cupar, Fife KY15 4NX
Scotland, Great Britain
Phone:  01337 870281 / 01334 839084
Fax:  01337 870310 / 01334 839105


cleftAdvocate Pathfinder (Plagiocephaly)
Vanesa Millan Galvez
Pastriz, Zaragoza, Espaqa


LKG-föreningen i Stockholm
Cleft Lip/Palate

Swedish Apert Association

Sweden Craniofacial Association

Face Connection

The Swedish Association of Rare Disorders

cleftAdvocate Pathfinder (Plagiocephaly)
Ann Johansson
Fdrjestaden, Sweden
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This cleftAdvocate page was last updated March 25, 2014
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