To add an event relevant to patients and families, send information to debbie@cleftadvocate.org.
Include internet links, if available.
Denotes AboutFace USA/cleftAdvocate-related events!
Send information to debbie@cleftadvocate.org.
NATIONAL EVENTS
LOCAL/REGIONAL EVENTS
INTERNATIONAL EVENTS
July 21 - 23, 2008
Las Vegas, NV
Las Vegas, NVWelcome Reception, July 20, 6:00 PM
Optional AboutFriends Day, July 24
This event is for the whole family and includes specially-designed workshops for kids (ages 7-10), pre-teens (ages 11 - 13), teens (ages 14-17), adults with facial differences and parents of children with facial differences. Siblings are included in all workshops and FREE childcare will be provided for children ages 6 and under.
Sponsorships opportunities, exhibit and advertising space available. Contact Debbie Oliver by e-mail or call toll-free 1-888-486-1209.
We subscribe to the HONcode principles of The Health On Net Foundation
This cleftAdvocate page was last updated April 20, 2008
International/National/Regional/Local Events
18th Annual Cher's Annual Retreat Myrtle Beach, SC
Myrtle Beach, SCJune 26 - 29, 2008
Contact Annie Reeves for more information!
Phone: (214) 570-9099
Toll-Free: (800) 535-3643
October 11 - 18, 2008 From Port Canaveral
From Port CanaveralThis 7-day cruise will take you to St. Thomas, St. Maarten and Castaway Cay! Complete details at the Apert.org website. $250 per-person deposit due by November 1, 2007.
Contact Cathie Sears for more information!
Phone: (803) 732-2372
This workshop is presented by Marsha Dunn Klein, MED, OTR/L and challenges the participant to look from the medical procedural aspects of tube feeding to the family, mealtime and interaction aspects of tube feeding.
“Get Permission” is an approach to mealtimes and feeding treatment which is based on the foundation of trust in a feeding relationship.
No international family events posted at this time.
July 11 - 13, 2008 Sheraton-Tara Hotel
Sheraton-Tara HotelA wonderful opportunity for families with children with Moebius Syndrome and adults with Moebius Syndrome to get together, make new friends and reconnect with old friends. Speakers, workshop sessions, childcare and a post-conference excursion to New York will be part of the 2008 Moebius Syndrome Conference.
Contact the Moebius Syndrome Foundation for more information!
Phone: (908) 766-4168 or (660) 834-3406
cleftAdvocate
Campers Only! July 20-24, 2008 Randleman, NC
Randleman, NCFREE, but space is limited!
Transportation to/from Randleman, NC is not included.
Children between the ages of 7-15 who are burn survivors, have a skin disease or a craniofacial anomaly are invited to attend. Victory Junction Gang Camp, located in central North Carolina, is a camp for children with serious medical conditions and chronic illnesses.
Treacher Collins Connection Conference Columbia, MD
Columbia, MDJuly 11 - 13, 2008 Sheraton Columbia Hotel
Sheraton Columbia HotelMore details forthcoming on this great event and fabulous opportunity for families with children with Treacher Collins as well as adults with Treacher Collins to get together, make new friends and reconnect with old friends.
Stay tuned for more details on this AboutFace USA event!
2nd Annual Lucky Smiles AboutFriends Family Day Otsiningo Park
Otsiningo ParkSaturday, August 23, 2008 Binghamton, NY
Binghamton, NYSave the Date!
Join us for the Pathfinder Outreach Workshop presented by cleftAdvocate founder Debbie Oliver, followed by a fun summer afternoon of activities! Food, drinks, entertainment and more!
Stay tuned for more details on this AboutFace USA event!
Saturday, May 3, 2008 Picnic at Hermann Park
Picnic at Hermann ParkSave the Date!
Join us for the Pathfinder Outreach Workshop presented by cleftAdvocate founder Debbie Oliver, then meet us across the street for an afternoon of activities, food and fun!
