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If you have a story you think will inspire and educate our website visitors, we'd love to hear from you!  Contact us with your story idea!  Consider submitting your experience on one of these topics:
Finding out.
Were you caught off-guard in the delivery room?  Or did an ultrasound tell the tale during your pregnancy?  What did you do to prepare for the birth of your child?  Do you have an acquired facial difference?
Surgery.
How did you feel?  What were some of the things you wished you knew ahead of time?  What did your team ask of you in preparation for the big day?
Feeding issues.  Which special feeder and/or feeding technique worked best for your child?  How did your baby adapt to cereal and solid foods?  How did you feed your child of any age after surgery?
Social concerns.  Tips on answering questions that arise when friends, family members or strangers ask "What happened?"
A great doctor or surgeon or team.  Tell us how these health care and other professionals have touched your life.
Or....whatever!  Your story can be short or long, educational or inspriational...or maybe it's just plain funny!  The idea here is to share experiences to help ourselves and others.  Contact us to have your story featured on this page!
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This cleftAdvocate page was last updated March 25, 2014
Featured Families - Stories of Craniofacial Care and Inspiration
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Faith
Mom blogs Faith's Journey

Emily
Read about Emily and her friends who were also born with cleft and craniofacial conditions!

Conner
UCLP, a twin
born May 23, 2006
Written from a father's perspective

Baby Miracle
A Samoan family brings their daughter to the US for critical care for multiple birth anomalies

Watch Healing Art!
Artist Metin Bereketli joins us in celebrating our incredible families!

Watch What If...??
Featuring our network families and the premier cleft/craniofacial support program, Pathfinders!

Jim Hill
Treacher Collins Syndrome
born September 21, 1940

Candar
Crouzon Syndrome

Alysia
Crouzon Syndrome,
born November 26, 1999

Noah
UCL, BCP, Pierre Robin Sequence and Chromosome 12q deletion (q15q21.2),
born September 21, 2005

Faith
Crouzon Syndrome,
born April 29, 1989

Judy
Embryonal Rhabdomyosarcoma,
Adult, Author of A Face in Time
Visit Judy's website at
Beneath the Surface

Conall
UCLP, born October 31, 2002

Delaney
UCL, BCP, Hypertelorism,
Diaphragmatic Hernia, No Corpus Colusum, born October 31, 2002
a program of ameriface
Wes
Midline Cleft, Basal Encephalocele, Nystagmus,
born March 17, 2006

Cora
CLP, Hydrocephalus, Amniotic Band Syndrome, born June 3, 2004

Andrew
PRS/Multiple Anomalies,
born October 23, 2004

Clarita  (en Español)
Crouzon Syndrome,
born April 4, 1989

Erin Ashley
BCLP, born March 2, 1987

Meet our Pathfinders!
Visit our Press page to see how AmeriFace and cleftAdvocate are making a difference!

Create Your Own Website!
We've partnered with CarePages to help you keep family and friends updated on surgery, growth and more!

David Roche
Cavernous Hemangioma, adult

What is Spirituality?
Jackie Hafter writes about her personal spiritual journey and being the mother of a child born with Treacher Collins Syndrome. Visit Gabe's website!

Jylian, AKA Jilly Bean!
Loeys Dietz Syndrome
Born March 17, 2002
Affectionately kown to us as Jylie Bean!

Brenna
Crouzon Syndrome
Born May 14, 1996

Allyson
BCLP, EEC Syndrome
Born December 22, 2004

Maggi
Craniosynostosis, Trisomy 9

Bryttani
Cleft Lip/Palate, Missing nasal structure, Coloboma, Multiple Anomalies

Visit our CarePages Directory!
And get your own free website while you're at it!

Blake
Crouzon Syndrome,
born April 15, 1994
Kim
Pierre Robin Sequence and
Amniotic Band Syndrome (ABS)
born September 25, 1996

Mason
BCLP, born July 14, 2003

Jared and Sara
Meet the House Family!

See our webring!
Personal cleft/craniofacial-related websites of cleftAdvocate's Family-to-Family Connection members.

Cassie
UCL and Soft Palate,
Born June 4, 2000

www.sonrieconmigo.com
A great resource for our Spanish-speaking families!

Rowan
BCLP, born May 12, 2002

Ilona Aada Pauliina
BCLP, born February 21, 2005

Jenny
Crouzon Syndrome, adult

The Cleft Advocate Guestbook
Messages from families around the country and the world; be
sure to sign the guestbook yourself!

Celebrate with us!
Be sure to watch the Montel Williams Show on Thursday, December 1 when cA Founder Debbie Oliver is presented with the Voices 2005 Award!

Visit the Photo Gallery!
Almost 300 smiling faces and growing...join the Gallery!

Brandon
BCLP/Pierre Robin Sequence, born December 10, 2003

Emma
UCLP, born January 30, 1988

Jeremy
Goldenhar Syndrome,
born September 12, 1999

Bailey
BCLP, born September 26, 1994

Jamie
BCLP, born January 31, 2002

Julia
UCLP/Amniotic Band Syndrome,
born May 14, 2002

Shiranthi
UCLP, adult

Kathy
BCLP, adult

Emma
UCLP, born May 14, 2003

Jeremiah
UCLP, born June 2001

Adrian
UCLP, born September 1999

See our webring!
Personal cleft/craniofacial-related websites of cleftAdvocate's Family-to-Family Connection members.

The Cleft Advocate Guestbook
Messages from families around the country and the world; be sure to sign the guestbook yourself!

Corrie Kennette
BCLP, born 1979

Blake
CP/Micrognathia
born June 4, 1999

Joshua
BCLP, born March 2, 1996

Landon (Microform CL) and
Olivia (BCLP)
Twins born September 6, 2002

Nicholle
Crouzon Syndrome

Tyler
UCLP, born October  9, 2002

Jeff
Submucous Cleft, adult

Tani
BCLP, born August 1, 2001

Tani's Parade Magazine Article, December 2002

Stephen
Marshall Syndrome,
born August 23, 1965

The Raines Family
Stephen's Family
Ashlyn and Aaron, Marshall Syndrome

Denise
CL, adult

Riley Ann
Incomplete UCL, Complete CP, Amniotic Band Syndrome, born December 22, 2001
Benjamin
Incomplete CL
Born October 31, 2002

Tanya
BCLP, born June 21, 1979

Kailey
UCL/BCP, Multiple Anomalies, Born 02/13/03

William Thomas
UCLP, born March 16, 2000

Rylan
BCLP, born March 30, 2001

Trevor
UCL/BCP, born August 10, 2000

Jillian
BCLP, born September 28, 2001

Olivia
UCLP, born October 27, 1998

Angela
UCL/BCP, adult

Austin
UCLP, born April 17, 2000

Lydia
BCLP, age 9

Christina
UCLP, adult

Savannah
BCLP, born October 22, 1999

Kyle
Cleft Soft Palate, age 4

Joshua
UCL/BCP, born June 24, 2001

Lisa
UCL & Alveolar Ridge, adult

Thomas
BCLP, born February 23, 2002

Ashlie
BCLP, born September 14, 2000

The Calley Family
Meet three family members
with clefts

Gerald Degerstedt
BCLP, born April 22, 1938

The Cleft Advocate Guestbook
Messages from families around the country and the world; be
sure to sign the guestbook yourself!

Also, be sure to enroll in the Family-To-Family Connecton
our on-line support network!